Congenital Heart Disorders

Congenital heart defects (CHDs) are conditions that are present at birth and can affect the structure of a baby’s heart and the way it works. They are the most common type of congenital or inherited disorder. As medical care and treatment have advanced, Infants with congenital heart or inherited disorders are living longer and healthier lives. Many now are living into adulthood.

Hypoplastic Left Heart Syndrome (HLHS) is a congenital or inherited disorder that affects normal blood flow through the heart. As the baby develops during pregnancy, the left side of the heart does not form correctly. Read more about Hypoplastic Left Heart Syndrome.

Tetralogy of Fallot is a congenital or inherited disorder that affects normal blood flow through the heart. It happens when a baby’s heart does not form correctly as the baby develops during pregnancy. Read more about Tetralogy of Fallot.

Dextro-Transposition of the Great Arteries (d-TGA) is a congenital or inherited disorder of the heart in which the two main arteries carrying blood out of the heart – the main pulmonary artery and the aorta – are switched in position, or “transposed.” Read more about d-TGA.

In order to further refine the data being displayed, some advanced options are available at the state level. Users can filter results by:

  • Infant gender
  • Maternal age group
  • Maternal race/ethnicity

The low frequency of individual congenital or inherited disorders means that most county level measures are suppressed due to counts of 5 or less.

Measure Description:

  • The Prevalence per 10K Live Births is the number of live-born infants diagnosed with the selected congenital or inherited disorder per 10,000 live births during the stated five year period.

Use the tabs to see the different data visualizations.

Measures are defined above the visualization. Additional help can be found in the Help Section.

To download a data table click on the Title Text of the data table, click "Download" on the right below the data visualization, click "Crosstab" from the listed file formats, and click "Download". A '.csv' file will then download and can be opened in a text or spreadsheet application.